Chronic pain is a subject that I see a lot of people mentioning lately. So I wanted to write about myself and the pain that I have been going through on a daily basis. It wasn’t until I started reaching out to others, researching chronic pain and mystery illness that I stopped feeling alone.
At the beginning of 2019, my health took a massive downhill. I had become a whirlwind of emotions, that’s for sure. Now we’re in a new year and I am still in the same position!
So what exactly had been happening in 2019?
After our trip to Disney back at the end of January/ beginning of February this year I returned to work for a mere 2 days. before waking up with sickness and chronic pain leaving me unable to work.
At the time I didn’t really think much of it because it’s me, and I tend to get ill often. After a few days, the pain in my stomach hadn’t shown any improvement. which meant I had to get myself signed off work!
For something that I thought was going to affect me for a few days. This has turned out to be a complete life changer. Days turned into weeks, weeks turned into months. Now it been over a year and I still get unexplained pain and sickness.
Back in May, one morning I ended up with severe pain relating to my PCOS (polycystic ovary syndrome). This led me to go from the doctor’s surgery straight to the hospital. where they, of course, ran tests.
3 weeks later I found myself having surgery to find out if I had endometriosis, which had been my suspected diagnosis for years. Fortunately (and unfortunately in some ways) I was found not to have this condition. however, the surgeon had to clean my fallopian tubes from infection and fluid.
At this point, I had been hoping the surgery would solve all my problems. After a miserable time recovering, countless ambulances and 111 calls It was easy to realise that it wasn’t so simple and the pain hadn’t been resolved. Now it just seems a small part of the issue.
Having had all that done, I still hadn’t improved. Leading to I having had more multiple trips to the hospital over time, scans of all sorts, been prodded with hundreds of needles, yet still no diagnosis. In fact, it continues as I am currently awaiting a pain clinic, still on multiple drugs to keep me going. Whilst maybe facing yet another surgery! That I don’t want to happen this year. (there is too much going on I just want to enjoy this year).
However, I have been under multiple consultants, it has been said they will probably never find the cause of pain.
illness has been affecting my day to day life.
I am not gonna lie, it is a shit position to be in. unknown cause for pain that stops me from being able to move. unable to work. unable to just be me. In the end, my health caused me to leave a job that I really loved, but has encouraged me to focus on getting better, and opened some different opportunities. I am a quite persistent personality after all.
Regardless, I try not to let my health rule my life. As much as it is a rollercoaster journey.
Chronic pain is a common condition.
A survey I had found by the daily mirror reports that “Almost half the adult population is living with chronic pain,” Suggesting that around 28 million adults in the UK are affected by some type of chronic pain (detailed as pain that lasts a period longer than three months). The NHS has given a very detailed post about this here.
Things you should consider:
- Chronic pain can be an invisible illness. One minute I can be completely fine and happy before a spout of pain strikes. Just because you can’t see what someone is going through, doesn’t change what is there.
- Pain management is tricky! If you think of ideas that could help someone, don’t be afraid to suggest it. Sometimes pain relief is hard to conker.
- Be persistent. Persistence has helped me when it comes to attending the doctors to tell them something is wrong. I had to keep going back for them to even start investigating problems.
- Don’t be afraid to talk to others. Feeling so crap all the time can really affect your mental health. It is ok to cry and talk it out.
- Keeping up with hobbies and keeping as normal as possible helps me control what I am going through.
- Remember to take your meds, this is so important. You have been given them for a reason! they are there to help you.